I know I’ve mentioned before that Teddy’s ‘connectedness’ with his environment is directly linked to the healthy functioning of his little body. If Teddy’s system is happy, he is with us. If it is distressed, he is disconnected. It’s really terribly simple.
But as simple as it may be, we didn’t work it out for the best part of two and a half years. The pieces of the puzzle fell into place in a beautiful dance of awakening. Last Easter we finally admitted to ourselves that something was ‘not right’ with Teddy’s development. His father was talking to his own mother about it and they discussed autism. She then mentioned an article she had read about diet, and… the rest is trial and error.
Through painstaking trial and error, in fact, we have discovered that Teddy’s tummy is happiest when he is on a wheat-free, dairy-free and salicylate-free diet. What are salicylates? I hear you ask in horror… I did too :) (follow the link to Wikipedia for more) The unfortunate news is that they are a naturally occurring pesticide to be found in all those foods you are proud of yourself for persuading your babe to eat: broccoli, for example, which Teddy loved. Grrrrr. And so began a couple of months of being chained to the cooker whilst attempting to find foodstuffs and alternatives that our littl’un could eat and tolerate. One of the biggest problems with intolerances is that the ‘alternatives’ have so many additives, preservatives, and last but not least, substitutes that are also untolerated, not to mention the fact that they are ridiculously overpriced as they have a desperate captive market, that they are simply not viable as the alternatives they set themselves up to be.
Just as each child is different, just as each child with autism is different, so is each child’s digestive system and tolerance / intolerance makeup. And with Ted, we have discovered that while wheat is a big no-no (we also avoid it due to intolerances – check out Wheat Belly if you are remotely concerned you might struggle with its digestion, too), its ancient predecessor spelt is just fine. So home-baked spelt bread, biscuits and cakes baked using spelt instead etc are all fine, if a little labour intensive. We have tried a plethora of milk alternatives: oat milk (he was horrified), KOKO – coconut is no good, soya he can’t tolerate and almond milk contains, however trace it may be, cyanide, and the one he finally settled on is rice milk. While he won’t drink it, it can be substituted for any milk in any recipe. And PURE sunflower margarine, or Vitalite takes the place of butter. For a long while he had no cheese at all, but we have now worked out that goat’s cheese – the hard white variety – is okay. The only fruit he is allowed is Golden Delicious apples, peeled and cored, or pears. Ditto. But a little imagination goes a long way. While shop-bought sausage rolls are no good, an allergy-happy alternative is mince with onions, grated pear, parsley, in a spelt and PURE pastry. And they’re delicious. But it is time consuming. It’s back to basics stuff. The simpler the better. All home-cooked. Motherhood at its most primal. The latest technologies, fast foods, easy meals… they may just as well not exist…
Can you hear the exhausting labyrinth of ‘cooked, rejected; cooked tolerated; cooked, loved’ through this monologue? ;)
There is a wealth of cookbooks out there, and a wealth of information. You can find recipes on Pinterest, on Mumsnet forums, oh everywhere. But the difficult truth is, all you can do is work it out for yourself.
But it is all worth it.
For those mornings after the days you got it right, when you open his bedroom door and, rather than a small person who barely notices your existence, who is locked away in his own little world, a bright-eyed and bushy-tailed toddler bounces up to you, looks you right in the eye and says “Hello Mummy.”
That’s when you remember what it’s all for. <3Note: I would dearly love for this, too, to be a place where we can share recipes. If you have any successful recipes you’d like to share, please do comment and we’ll get a page together where I can post them for everybody. Thank you. :)